ASPIRATION



A personal letter from mother and Sunrise K' Foundation president, Joanna Dogmoch:

My four-year-old son Kyran was diagnosed with this cruel and devastating eye disease at just four months of age. As a baby, he was very teary eyed, almost constantly. We took him to several renowned paediatricians in Madrid, but their diagnosis was always the same: he had blocked tear ducts. His elder sister had blocked tear ducts as a baby so we assumed nothing more and followed instructions from our doctor. When the tearing became worse, we went to a specialist who announced the devastating prognosis that my son had glaucoma. This day will remain as one of the worst days in my life. I had never even heard of glaucoma, let alone in children. Since then, my brave boy has undergone more than 30 anaesthetic treatments and 27 surgeries in the first four years of his young life. We visit the hospital every two months, where Kyran undergoes a series of painful operations. It breaks my heart every time.

Our lives are a constant struggle, with every surgery, every daily dose of eye drops, every illness, or every time he tells me he can't see something causing me to worry that we are one step closer to facing our worst fear – that my child could lose his eyesight completely.

But I find comfort and hope in knowing that with more research into this condition, there is the possibility of better treatment, or eventually a cure.

One of The Sunrise K' Foundation's aims is to raise awareness of the disease to other parents. A timely diagnosis is crucial, thus all countries should implement newborn ophtamology checks. Our other goal is to raise money in order to fund research and hopefully one day find a cure for this silent illness that only affects children in such brutal a manner.

Glaucoma has become my battle in life and I have vowed to fight for Kyran and all other children suffering from this heartbreaking disease. The fear the families affected are living with every day is what is pushing me to make sure that the Sunrise K' Foundation will get the attention it so deserves.

I hope you can help me make people see this disease for what it is, and try to find a cure for the children who are suffering from Glaucoma.

We appreciate your donations to this cause, and kindly ask you to spread the word about congenital Glaucoma and the Sunrise K' Foundation so that one day we win the battle against this debilitating eye disease.

Yours Sincerely,
Joanna Dogmoch



LINKS



SUNRISE K FOUNDATION 2013

Raising awareness about childhood glaucoma. Sunrise K' Foundation – a non-profit organisation dedicated to raising awareness about childhood glaucoma, one of the leading causes of childhood blindness. Working with Moorfields Eye Charity – the charity that supports London’s acclaimed Moorfields Eye Hospital - and world-renowned glaucoma expert Professor Sir Peng Tee Khaw, the Sunrise K' Foundation's mission is to support research dedicated to finding a cure for this debilitating disease.

COPYRIGHT SUNRISE K FOUNDATION 2013


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